Fourteen days ago I began a further exploration of me. A form of my own palliative care. A way to stem both the physical pain in my body and the emotional pain. Modern medicine is reaching its limits. I am learning to reframe my disease as a disease and not as my body. I am working with Pamela Madsen (PamelaMadsen.org). A sexuality and fertility educator. A woman I instantly felt a connection with.
I complained to her that my sexuality, my sense of arousal, my ability to orgasm was dimming with my mind. The fog that consumed everyday things like did I take my medication, where did I put my phone, the name of friends and family was also fogging me. The disease has stolen so much, I was not willing to let this be stolen too.
And so it began. Meditation, Explaining to me the link between my pilot light, those delicious warm feelings of arousal, the tingle between my legs and my heart. My pussy connected to my uterus, my cauldron and through the golden thread to my heart. A started to look for what I thought was lost.
Cupping my genitalia through my clothing I began a slow rock. The heal of my hand against me, pressure firm but not hard. My breathing slowed to the point I had to be reminded to inhale. Slowly I felt that familiar warmth and engorgement that was so elusive.
And then the emotional floodgates got pried quietly open. “Who am I?” Over and again. Thoughts I never ever thought about. “Who am I?” Mother, Wife, Patient, Giving, Wicked, Words came out and the tears began. I continued to rock and breathe
“What do I want?” Now I felt raw..I realize that now, at the moment the emotion poured. Hand on heart. My rate slowed and I rocked. The words poured. Breathing again and rocking and more tears.
With Pam’s help I slowly came back. My eyes opened and some of the pain was dulled. I felt “whelmed”. My circuits do work. I need to reframe some of my thoughts and love my body into staying.
I will work on maintaining the circuit. Learning to soothe myself by maintaining my level of arousal. I must learn I deserve this. I was surprised at the level of emotion that poured from me. The work is just beginning.
I wrote this piece after my first meditation for me. Why did I keep it a secret. Was I ashamed to admit I am that sexual vital creature? Was I embarrassed to be that woman with yearning sexuality? The answers were yes and yes. Last night I attended a seminar with other women. We dipped our feet into what I had done in session and over the week. This was not new to me. I could do this with other women. And even knowing every time at home the door to me opened and revealed more of my I was ok. I watched the tears fall from the other women, I watched one woman encounter profound physical pain, another felt relatively stilled and still another felt distant and watched from within. I on the other hand felt on fire. My skin literally burned to the touch. My friend and Pamela asked if I was ok as I was transformed from the woman who entered the room. I flushed with a life force I had not felt in years. The warrior is fighting. She carried a torch. A life force exists.
Today I open this piece. I share it for me. The embarrassment and fear gone. My warrior slept today. Exhausted but comfortable. Soothed by my sense of arousal. I am peaceful and alive.

