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Sanctuary

Amanda Tilton Sea Cliff1

Sanctuary: a place where someone or something is protected or given shelter. I thought about this tonight as I looked at the exquisite picture of home taken by Miss Amanda Tilton.

Sanctuary: a place where someone or something is protected or given shelter. What is sanctuary?

The idea of sanctuary has been elusive to me in my lifetime. The first memory of no sanctuary was a horrid birthday party at age 5. Creepy in a mansion in Bayville, my skin crawled as the puppet man played the piano and the children played musical chairs. My memories are in black and white. Flashes come but I still shake at the incomplete memory.

Another loss of sanctuary was being a 13 yo girl at the Orthopedist with my mom. Sitting on the exam table to get my cast changed. My mom leaves the room. She had her first heart attack. Mom’s can die. She lived to have 5 more heart attacks. But limbo world I lived.

The assault on my psyche continued into college. Not only was it an assault on my psyche but my person and my space. I can still see his face, smell his cheap cologne and feel his cruelty. My apartment was no longer that sunny place. A pretext to study, became an assault. No alcohol. No drugs. Violence and Power. I called a friend who dragged me to the hospital. I returned to class as if nothing at happened. The police strongly advised me it was not worth the pain to report. My senior thesis about “Date Rape” written in 1986 received a commendation from the President’s Office at Stony Brook University. I advocate for Sexual Assault Victims. Sadly today, not much has changed on college campuses. No Sanctuary.

April 2, 2006 my feeling of safety and security flipped as completely upside down as it could. A trip to the ER to confirm a mono diagnosis due to a bad blood drawer turned into a parent’s worst nightmare. “Mrs. Dunn, Can you come speak to me across the hall. Is there someone we can call?” The line remains vivid in my head. T-Cell Leukemia. But he’s just 6 years old.To watch a child endure the vicious testing, treatment, side effects of chemotherapy. To feel ineffective as a parent to your three healthy children who needed a mom, but was too occupied in keeping my youngest alive. To watch a marriage become one of convenience…two ships that pass in the night. Sex was hall sex where we both yelled fuck you at each other. No Sanctuary

And finally the invasion of my body by a cruel and miserable hateful disease Lupus. It attacks the Sanctuary I have all along. Me. For as this disease attacks my brain and body. As it steals pieces of my life, my job, my ability to drive, my memory, my strength, the ability to breathe, alters my relationships with my friends, my family and my husband, I will not let it steal my Sanctuary. Sanctuary is not a place but it is within each and every one of us. My Sanctuary is me.

I don’t want you to go

The quietude of the breaking dawn seems to drive me to wakefulness and contemplation. The gentle sound of rain falling filled the air in its own symphony. I lay there alone just lost in thought and sound. A tear silently falls from my eye. “I don’t want you to go.”  Six words that changed everything. Words more intimate than any ever spoken between us. Words spoken on another quiet rainy morning. Words so painful for him to say.  If the wall comes down, the flood will encompass the world, His world, our world. There are no reassurances to utter. No false promises to make. “I will do my best to stay.” I reach a hand out, he holds it tight and then recoils as if my touch is acid. This is all too painful. Living in limbo. Love weighted down by fear.

I think of the two Canadian mounted police officers and the two Las Vegas Police Officers and the New Jersey Firefighter who went to work and never came home. Their loved ones did not want them to go.

I think of the man in the bus coming home from a comedy show, a man driving in a car, a family in a van. Their loved ones did not want them to go.

I think of twenty eight years listening to the sound of the gun safe opening and yet another shift to begin. I say the silent prayer that I have said every time. “I do not want you to go.”

I lay thinking of the luxury I am given. A time to express those feelings and words unsaid. A luxury of choices to live the life worth living. To let go of the minutia. Yes daily tasks still occur; bills, laundry, groceries, doctor appointments. But the riches are mine for the seeking. Take advantage of gifts where you find them I remind myself.  And more tears fall.

 

 

June 8, 2014

Conception. This blog was conceived out of a month of facebook posts designed to raise awareness about the cruel and mysterious disease called Lupus. It is now so much more.

Conception: A life worth living.

Conception: A new way to live.

Conception: A new way to die.

The whippoorwill woke me with its persistent beckoning this morning.   I could hear the chirpings of newly hatched babies in their nests. The sun flickered over our bed. In that instant, I smiled at the sound and the beauty. I filled my lungs with the first deep breath of the morning and beauty was quickly replaced by the searing pain of the knife between my shoulders. My chest was heavy. Air…there was no air. I attempted to pull myself to sitting and my body refused. Pressing a heel into the wall for leverage, I dragged my self to sitting hoping gravity will expand my lungs. My head pounded and my joints ached. The birds continued to chirp. I closed my eyes seeking strength and diversion. A cardinal cooed for his mate.

A flight of stairs down to the bathroom, one heavy foot after the other. I will not fall. Count the steps. Do not look down I tell myself. The bathroom welcomes me. A cool breeze blows through. I sit on the toilet to catch my breath. A flight of stairs and fifteen steps and I am winded. I inhale the breeze deeply and try my inhaler. Will it make a difference today? I gag on the taste as the medicine as it fills my lungs. I turn the shower on. The steam beckons me. I climb inside, thankful for the wall to lean on. The water hits me like drops of acid stinging my skin. My joints begin to let go. The phoenix begins to rise from the ashes. I stand as long as I can bear the heat. My skin now the same pink of the butterfly mask on my face. None of which should be happening on the dose of steroids I am on.

One more flight down and I am on the main floor. My big dumb lab greats me at full throttle almost taking me off my feet. so much for an animal sensing weakness. But I laugh because how could you not. He is such a mush and he seems to be smiling. I pour my glass of juice and begin the am regimen- twenty two pills, test blood sugar, lovenox injection, insulin injection. My blood sugar is 170. My body’s tell, as in poker. Something is off. A cup of tea and some toast and two more pills..for the nausea the twenty two are already causing. I grab my tea and sit on the back patio. I watch the show before me. The miserable winter has bred a new world of birds..cardinals, blue jays, sparrows, robins, crows flitting around. Life unfurling. Beauty and joy.

A phone call from my first born, I suck a deep breath as he is out of town to attend a graduation and my day is not going to bother him. We chat about his new found penchant for better clothing. I wonder to myself if all those years listening to his fashion minded sisters are rubbing off. Again beauty and joy.

My fourth born bounds through the house quite pissed at the black hole that swallowed his review packet. I smile and somehow have learned by the fourth kid, I did not get involved. I was not the helpful, nor sympathetic mom. Mom’s are never right. Ten minutes later, he is at my side with a solution. And a good morning hug for me. Beauty and joy.

My third born comes home from her night out of town. She and her father engage in conversation. One confused the other more than the other. She then joined me to online grocery shop. Things are always good when Mom is spending money the way she wants. She moves the computer keys so she does not notice “me” and I get a delightful crumb of conversation. Beauty and joy.

Later tonight, my second born returns from a 12 hour work day. She sizes me up and gives me a hug. Has the evening fight with her sister who immediately pilfered her food that she brought home, asked for gas money and shared her day with pictures and stories. Beauty and joy.

My chest still feels as if I have been stabbed, Air..well there will be more tomorrow. My joints ache. My eyes are blurry, my head pounds. But I had a day of beauty and joy. That is what matters. It is not my choice how the disease effects my body but it is my choice to decide how I am going to let that effect me.